My hatred isn’t for autism anymore. I have come to peace with autism a long time ago. My hatred of autism stems from the “snake-oil” salesmen who are making a killing on parent’s desperate need to “fix” their children. I remember those days myself and I hated the fact that we couldn’t afford the “latest-greatest” treatment to save JR. We couldn’t afford the DAN doctors because most refuse to accept insurance. Insurance would never authorize charges of $600 per hour and no thinking intelligent individual who says they care and want to help would ever charge that amount either. Or so you would think, but alas there are many “DAN” doctors who do that very thing. I know of only one doctor in Pennsylvania who is DAN certified that also takes insurance as payment in full. He to has a son on spectrum who he believes was injured by his vaccines. I wonder if that has something to do with it? Possibly, but then again there are other DAN’s who also have children on spectrum and who also believe vaccines contributed to their child’s autism who don’t take any insurance and charge obscene amounts of money. So maybe the doctor who does accept the insurance is truly in it to HELP our kids. What a novel approach!!
Then of course no treatments (except MB12 shots) have ever been covered by insurance, even if you get the doctor to write a script for the alternative treatment. Insurance companies caught on to that one pretty quick. We have had JR on supplements of varying cost for the past 8 years solid and everyone we have paid for out of our pocket. The MB12 shots are the only thing our insurance (Aetna at the time) ever paid for. And the MB12 shots were (after 18 months of administering them) not living up to their hype either. Most of the supplements were beneficial though, for a time but since JR has hit puberty we have been able to dial back at least 25% of these supplements. And I believe another over haul will be done by his 15th birthday this September. Maturity has helped improve his autism greatly. That plus his educational setting plus the supplements we have done in the past have led him to the point now where we can discontinue the use of some of these supplements.
And of course insurance won’t pay for most other alternative treatments because they aren’t FDA approved for the treatment of autism. A perfect example of this is hyperbaric oxygen therapy. All though approved for many things, rapid wound healing being but one; HBOT is not approved for the treatment of autism. And it’s not FDA approved because big PHARMA doesn’t want it approved. PHARMA believes that the only thing that should be used for our children are their products. You know the drugs that cause suicide and homicidal tendencies in a good percentage of individuals. I often tell people PHARMA got their bite at the apple, in the form of vaccinations. They won’t get another.
I know I am going to get flack from parents who are still desperate and from the “snake-oil” salesmen who make their fortunes because of these desperate parents, but that’s to bad. I am not a neurodiversity nut job either so please don’t accuse me of being one. IF a child is sick with gut issues (which is what causes all the other issues including neurological) then I firmly believe in treating that child. I firmly believe in bettering that child’s life and I don’t believe in “just accepting” the hand that your dealt. If a child is in physical pain they are incapable of learning PERIOD. If they can’t learn then no educational setting no matter how good it is will do much good. The body MUST be healed first. What I am saying is that you don’t have to buy into the thinking that it’s all or nothing. Many supplements are made that are not autism specific that can be of great benefit for our children.
So far what I have discussed is the medical side of autism. However, what really prompted me to even write this article is the iAdapter protective case for the iPad2 that is sold by AMDi. It can be seen HERE. This case is marketed as such “The iAdapter 2 is a fully rubberized housing that is designed to protect your iPad2 from damage and everyday usage.” My son got this case along with his iPad about 2.5 months ago. The case is coming apart with the pins where the screws go into snapping off. The bottom corner of the case has snapped off now too. I wrote a review of this case over the weekend which I fully do NOT expect the AMDi company to put on their website. That is why I posted it to my Facebook account and am including it here in this blog. This is what I wrote:
I am the mother of a 14 year old son who has autism and is non-verbal. My school district purchased an iPad2 and an iAdapter case for his use. My son has had these items for a little over 2 months now. To say I am EXTREMELY disappointed in the iAdapter (especially for what it costs) would be the understatement of the week!! The overall construction is very disappointing as the speakers inside the case have no protective housing and the wires are exposed under the iPad itself. But the worst is the fact that this case is marketed for the special needs community (by virtue of it being sold on your site, where other products are marketed for special needs individuals) and it simply does NOT stand up. My son occassionally DROPS not throws but drops the unit and the posts inside the case that the screws are screwed into are snapping off from these occasional drops. Within the first 8 days of it being in our possession the charging cable quit working all together. But the most disappointing thing is its overall construction. I guess one can’t expect much from products made in China!!!!
This review is on my Facebook page now and I will be writing a blog post on it as well. I am SICK & TIRED of companies marketing things for the special needs community so they can gouge the buyer and then the item does not stand up to the special needs individual anyway. If I could give this a negative rating I would certainly do so!!!
This is another perfect example of a company taking advantage of those least able to afford it by marketing their wares with a special needs label and charging outrageous ($265.00 for the case I mentioned above) amounts of money for things that do not live up to their claims. This company reminds of the folks at Dynavox.